Who Are We
GVWC Sickle Cell Initiative
The GVWC Sickle Cell Support & Research Initiative is dedicated to improving the lives of individuals and families affected by sickle cell disease across Texas through patient support services, health education, community outreach, advocacy, and research-driven programs. We work to reduce health disparities, expand access to quality care, and empower communities with the resources needed to prevent complications and improve long-term outcomes. Our mission is to create a future where every person living with sickle cell disease in the United States receives compassionate support, equitable care, and hope for a healthier life.
"From crisis to care – building a better life for every child.”
Our Impact
RESEARCH & DATA
Through community outreach programs, the GVWC Sickle Cell Support & Research Initiative has helped many individuals living with sickle cell disease across to gain access to education, support resources, and connections to medical care. We collect data, identify gaps in care, and develop evidence-based strategies that improve health outcomes.
COMMUNITY OUTREACH EDUCATION
The GVWC Sickle Cell Support & Research Initiative helps individuals living with sickle cell disease across Texas by providing patient support services, health education, and connections to quality medical care. We assist families with crisis prevention resources, community outreach programs, and guidance that improves treatment adherence and daily disease management.
CRISIS KIT
The GVWC Sickle Cell Crisis Kit is designed to support individuals living with sickle cell disease during pain episodes and everyday disease management. Each kit may include hydration supplies, a thermometer, heating pad or comfort items, medication reminders, emergency guidance, and educational materials to help patients recognize warning signs early. By providing these practical resources, the kit helps families respond quickly to crises, reduce complications, and improve overall quality of life.
ADVOCACY SERVICES
The GVWC Sickle Cell Support & Research Initiative (GSSRI) provides advocacy services that elevate the voices of individuals living with sickle cell disease across Texas and ensure their needs are represented in healthcare decisions.
We use data and community insights to inform policy recommendations that improve access to care, reduce disparities, and strengthen support systems. Through collaboration with stakeholders and community engagement, we work to drive meaningful, lasting change in sickle cell care.
St Ruth Children's Research Hospital
SUPPORTING LIVES. ADVANCING SOLUTIONS
OUR EVENTS
Upcoming Events
- Date and time is TBDLocation is TBDSupporting Treatment and Research
Date and time is TBDLocation is TBDSpreading Knowledge and Advocacy.
Date and time is TBDLocation is TBDEmpowering the Next Generation.
Date and time is TBDLocation is TBDBringing healthcare directly to rural areas.
Sat, 30 MayKrogerJoin GSSRI on May 30, 2026 at Kroger for a community data collection event focused on improving sickle cell care. Share your experience, help identify gaps, and be part of solutions that drive better access and outcomes. Your voice matters—come make an impact!